Resource Guide for Chromosomal Abnormalities
Address: 4301 Connecticut Avenue, NW, Suite 404 Washington, DC 20008
Internet address: http://www.geneticalliance.org/
Description of services provided: The Genetic Alliance offers information on genetic disorders and the impact of the diagnosis on individuals and families. From the main page, you can search conditions, organizations, and resources.
Address: 11 Keats Court Coto de Caza, CA 92679
Internet address: http://www.genetic.org/
Description of services provided: This website provides support services, a newsletter, and information about Klinefelter syndrome and other sex chromosome variations.
Address: 1275 Mamaroneck Avenue White Plains, NY 10605
Internet address: http://www.marchofdimes.com/
Description of services provided: The March of Dimes provides information on pregnancy and birth defects and gives referrals.
Address: 666 Broadway, 8th floor New York NY, 10012
Internet address: http://www.ndss.org/
Description of services provided: The National Down Syndrome Society provides information on genetic disorders and listings of genetic counseling services.
Address: 233 Canterbury Drive Wallingford, PA 19086
Phone: 1-800-336-GENE 1-202-966-5557
Internet address: http://www.nsgc.org/
Description of services provided: On the National Society of Genetic Counselors website, you can learn more about genetic disorders and find a list of genetic counseling services.
Address: 2982 South Union St. Rochester NY, 14624
Internet address: http://www.trisomy.org/
Description of services provided: This nonprofit volunteer organization is a network of families and professionals who are dedicated to offering support to those affected by Trisomy 18, 13, and related chromosomal disorders. You'll find a resource center with fact sheets, a bookstore, membership information, and upcoming events.
Address: 231 W. Park Ave. Sellersville, PA 18960
Internet address: http://www.triplo-x.org
Description of services provided: Triple X Syndrome provides articles, prenatal diagnosis information, and contacts for those affected by this condition.
Address: 14450 T.C. Jester Houston TX, 77014
Internet address: http://www.turnersyndrome.org/
Description of services provided: The Turner Syndrome Society creates awareness, promotes research, and provides support for all those affected by this condition.
Address: P.O. Box 268 Lakewood CA, 90714
Internet address: http://www.fivepminus.org
Description of services provided: This society encourages and facilitates communication among families affected by 5p syndrome by raising awareness and providing information.
Address: 5700 Midnight Pass Rd., Suite 6 Sarasota FL 34242
Internet address: http://www.pwsausa.org
Description of services provided: The Prader-Willi Syndrome Association provides information on this condition, as well as resources, support services, links, and publications.
- Reviewer: Michael Woods, MD
- Review Date: 05/2014 -
- Update Date: 05/28/2014 -
This content is reviewed regularly and is updated when new and relevant evidence is made available. This information is neither intended nor implied to be a substitute for professional medical advice. Always seek the advice of your physician or other qualified health provider prior to starting any new treatment or with questions regarding a medical condition.
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